langual malacia (sp?)

so we were at the er last night and they told me that aiden has langual malacia and they are going to put him to sleep ( which i am so nervous about) and stick a scope down his throat. from my understanding it is a build up of cartlidge around the vocal cords. it is really scary though because now when he cries there is no sound coming out just little squeaks and nobody at the hospital could tell me why. they said that this is a common condition but i have never heard of it. if anyone knows anything about this any advice would be appreciated. thanx

oh they have not done the scope thing yet we are doing that next monday.

langual malacia (sp?)

I don't have any advice or experience, sorry. That sounds scary mama, I hope everything goes well. I'm thinking of you.

langual malacia (sp?)

I also haven't heard of it but wanted to wish you well.

langual malacia (sp?)

hmm I can't find anything on it. Although I think it is lingual.

langual malacia (sp?)

yea i think your right i also think it is one word. i am just so nervous about this i asked if aiden will ever be able to speak since he kost his cry and they said that i should ask the ent because they could not answer that for me. this is just all so scary.

langual malacia (sp?)

ok i found this on it, it says that the baby would stay awake for the procedure but they told me he had to be put to sleep. aahhhh the worst stuff always happens to me. Laryngomalacia What is laryngomalacia? Laryngomalacia is the most frequent cause of stridor or noisy breathing in infants. It occurs as a result of a floppy portion of the larynx (voice box) that has not yet developed the strength to provide rigid support of the airway. During inspiration, negative pressure is created through the larynx, which results in a collapse of these structures into the airway and a narrower breathing passage. The partial obstruction is the source of the noise with breathing. What are the characteristics of laryngomalacia? The hallmark sign includes a high pitched or squeaky intermittent sound noted mostly on inspiration. It is usually more prominent when the infant is lying on his/her back, crying, feeding, excited or has a cold. This is usually first noticed in the first few weeks of life. It may worsen over the first few months and become louder. This is because as the baby grows, the inspiratory force is greater, which causes greater collapse of the laryngeal structures into the airway. This is usually at it’s worst at 3-6 months and then gradually improves as the rigidity of the cartilage improves. Most children are symptom free by 12 months. Is laryngomalacia a dangerous condition? It is usually a benign, self-limiting condition, which does not interfere with a child’s growth and development. More worrisome symptoms to be mindful of include difficulty with feeding, inward collapse of the chest wall above or below the ribs during inspiration, failure to gain weight and color changes to pale or blue. How is laryngomalacia diagnosed? The diagnosis of laryngomalacia is made using a flexible telescope or fiberoptic laryngoscope. This is a flexible tube that contains light carrying fibers that is passed through the nose and allows the doctor to view the voice box. This procedure is performed in the doctor’s office with the child awake. After a detailed examination the physician will categorize the condition as being mild, moderate, or severe. How is laryngomalacia managed? Mild symptoms and signs may be managed by periodic observation only. Moderate obstruction may require home monitoring of breathing and a more detailed assessment. Severe conditions may require a surgical procedure to relieve the obstruction and correct the functional abnormality. Is laryngomalacia associated with any other conditions? Laryngomalacia often has an association with stomach acid reflux (GERD). All infants have some reflux to some degree or another. However, infants with laryngomalacia often have more stomach acid reflux than others. When the stomach acid regurgitates to the level of the voice box, it can cause further swelling of the airway and worsening of the noisy breathing. Children with this condition do better if lying on their sides or stomachs, sitting upright or at a 30-degree angle. The child should also be held in an upright position for 30 minutes after feeding and never fed lying down. If the reflux is significant, medicine may be prescribed and thickening of feeds may be recommended.

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