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Update on my sonTe had a video swallow study done on Monday and we finally got some answers. First, we found out that his recurrent pneumonia may be due in part to aspiration, most likely fluids. We are supposed to thicken all of his fluids now. Second, we learned that his speech and feeding issues are probably becasue the muscles in the back of his tongue so not work properly.. he has trouble moving it. He is definitely not tongue-tied though (we were suspecting that may be part of the issue). Lastly we found out that his swallowing reflex is slow. Most people start swallowing and close off their windpipe when food/drink reaches the back of the mouth.. with Te, that doesnt happen till it reaches his throat and its even worse with liquids cuz the move so quickly. The specialist who did the study also told me that this is why he wasnt able to latch on and successfully nurse too, so that makes me feel better. Ive always felt bad for giving up with him.. I tried to pump for him, but by like 6 weeks I pretty much dried up (my body doesnt respond well to pumping). Im waiting for a written report from the Dr with his full reccomendations and stuff, but I know he wants him evaluted by occupational and physical therapists as well (He already has a speech therapist through Birth to 3/Early Intervention). But it feels good to finally have some answers and direction for treatment/prevention.
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Update on my son
Update on my son
Update on my son
Update on my son
Update on my son