Update on my son

Te had a video swallow study done on Monday and we finally got some answers.

First, we found out that his recurrent pneumonia may be due in part to aspiration, most likely fluids. We are supposed to thicken all of his fluids now.

Second, we learned that his speech and feeding issues are probably becasue the muscles in the back of his tongue so not work properly.. he has trouble moving it. He is definitely not tongue-tied though (we were suspecting that may be part of the issue).

Lastly we found out that his swallowing reflex is slow. Most people start swallowing and close off their windpipe when food/drink reaches the back of the mouth.. with Te, that doesnt happen till it reaches his throat and its even worse with liquids cuz the move so quickly.

The specialist who did the study also told me that this is why he wasnt able to latch on and successfully nurse too, so that makes me feel better. Ive always felt bad for giving up with him.. I tried to pump for him, but by like 6 weeks I pretty much dried up (my body doesnt respond well to pumping).

Im waiting for a written report from the Dr with his full reccomendations and stuff, but I know he wants him evaluted by occupational and physical therapists as well (He already has a speech therapist through Birth to 3/Early Intervention). But it feels good to finally have some answers and direction for treatment/prevention.

Update on my son

I'm really glad you have some answers Smile

Update on my son

I'm glad things are coming together.

Update on my son

Ugh, they now want me to thicken all his liquids becasue of the swallowing/aspiration issues.. have you ever tried to get a kid to drink water thickened with rice cereal?? Come on Drs.. that is just seriously NASTY :roll: Ok, sorry I just had to vent..

Update on my son

Poor kid and mama. That sucks.

Update on my son

Aw Im sorry hun! At least you are getting the answers you need. And hopefully soon you will be able to fix his problem. If you need anything just let me know.

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